In this episode we have the massive honor of sitting down with Nancy Petersen from Nancy's Nook, which most know her today from an ever growing Facebook educational page for Endometriosis currently supporting about 170k people! Her mission for this page is, "Supporting you to understand the disease, advocate for your health, and get the best possible treatment." We believe she is the true pioneer and attribute the progress of Endometriosis treatment to her trail blazing years of traveling around, educating on this disease, and creating this group to support the ever growing numbers in the fight for this disease!
Nancy walks us through her journey of diagnosis, failed treatment with ablation surgery and a total hysterectomy leaving her with untreated leg pain, which ultimately lead her to finding Dr. Redwine and his studies.
Nancy tells us the story of forming Nancy's Nook with an effort to share information to people seeking non-big pharma education and research to all patients in effort to better advocate for themselves. Part of this education is knowing that endometriosis takes not only a physical toll on our bodies, but a toll on our mental health. Nancy talks about how far the Endometriosis and Adenomyosis community has come, however, the abundance of gaslighting and trauma is still too much.
Once given a diagnosis, if surgery is not done by a skilled Endometriosis surgeon, disease is often missed. We learn that reproductive organs such as, uterus, ovaries, cervix are not the main location of Endometriosis, but the lower pelvis is a big culprit to this invasive disease.
Nancy is a wealth of knowledge and educates for women's health.
She shares her expertise on:
- proper diagnosis
- chronic pain
- proper education
- mental health resources
- continued advocacy on Endometriosis and other chronic diseases that often can be closely associated with Endometriosis.
Grab a cup of coffee or tea and a notebook because you will be enlighten along the way! We hope you enjoy and learn just as much as we did from Nancy Petersen!